That’s it… Been to my first photopheresis experience and it is not as unpleasant as I may have thought…
For the ones who know me in person, imagine me on a bed for more than 3 hours without moving my arms and listening to a machine extracting my cells to get a UV treatment!
Not easy for me not to move,,, my whole body is hitching and I can barely scratch my nose with a needle in each arm…
I am now waiting for more than 2 hours for my treated cells to be transfused then I’ll be good to go back home but back in hospital tomorrow morning for same procedure and again week after next….!
So much fun ahead for the next +- 9 months!
I truly hope that this will be successful to treat my GVHD!