Had yesterday my appointment with the haematologists and the great news are that my blood test is really good… No issues and the latest from the yearly check-up are also good!
Of course as we know now, there is always a flip side and in this case, as mentioned in chapter 30, my legs are suffering and I now have to make a choice to get rid of that GVHD thing!
Basically I can chose from photopheresis as explained in the previous chapter I.e. 9 months of treatments taking me 2 half days every other week but no side effects or a pill everyday for 9 months but cramps and swollen eyes!
I have till mid-July to make that call and not easy to do! I still think we go in the right direction and improving… Looks like my issues are getting smaller and smaller but I am careful and do my best to manage my health as much as possible…
Next post should be around mid-July but if you know someone who did photopheresis, please share the experience with me…
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